The Future of Health Data
About This Project
Sharing and Utilizing Health Data for the Public Good
Health and medical progress depends on the ability to share and use data on a wide range of issues, ranging from food safety and drug effectiveness to patient treatment outcomes and public health indicators. There are many obstacles to sharing and using data managed by the U.S. Department of Health and Human Services (HHS) and other institutions in ways that allow its full value to be realized.
HealthDataSharing.org was developed as part of the Open Data Roundtable Series: Sharing and Utilizing Data to Enhance and Protect Health and Well-Being, which allowed the Office of the Chief Technology Officer (CTO) at HHS and the Center for Open Data Enterprise (CODE) to co-host a series of three roundtables for experts inside and outside of government to find ways to improve how health data is shared and utilized for the public good. HealthDataSharing.org presents findings from those roundtables, further research by CODE, and additional input from key stakeholders. The Roundtable Series and HealthDataSharing.org were funded by an Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI).
Reports & Resources
Artifical Intelligence & Health Data
How can AI be ethically leveraged to improve diagnosis, treatment, the delivery of patient care, and the efficiency of healthcare systems?
Balancing Privacy & Sharing Health Data
How can the privacy of sensitive health data be protected while still allowing for appropriate access and use?
Social Determinants of Health Data
How can the use of data on the social determinants of health at the federal, state, local, and individual levels be catalyzed to improve health outcomes?